Fighting for baby Yara

Yara, our 18-month-old baby girl
has been fighting for her life since birth.

Diagnosed with incredibly rare and severe epileptic encephalopathy, causing developmental delays and frequent seizures. She is one of only 75 known cases worldwide.

Her family face a grim possibility of losing their family farm in the process of finding Yara the best care possible.

Our goal is to raise funds to cover ongoing treatments, travel, supportive aids and other related expenses. Any amount, no matter how small, will make a significant difference in Yara's life and her family's well-being.

10% of donations are passed on to the CureGRIN Foundation for rare disease research